Mandy Vella who is just 24, has to live with a lot of pain because she suffers from Cystic Fibrosis. She says that this is affecting her lungs and her pancreas, that she is often breathless and she cannot work at a normal job. Her condition affects around 20 people in Malta and while there is now hope with a new medicine, it is very expensive.
Mandy was only three years old when her parents noticed something was not right, and they were given the news that she suffered from the condition known as Cystic Fibrosis which up until that time they had never heard of. Cystic Fibrosis is a genetic disorder which affects the lungs, pancreas, the intestines, and liver. Mandy said that she feels her health is failing.
“I recently had to cut back on my working hours, because I was feeling too tired. Eight hours are too much for me, I lose my breath, I feel exhausted and I start coughing.”
Mandy said that there is now a medicine called Orkambi from the EU which costs €100,000 a year which is not yet available in Malta.
“This medicine can keep me stable, and there is an improvement in one’s life. Hopefully, we can start getting it in Malta so that those who have CF will have a cure,” said Mandy.
She pointed out that those who suffer from Cystic Fibrosis suffer a lot because of other people’s germs. “We have to be very careful of germs, such as when someone has a cold or sneezes,” she added.
Mandy said that she will do everything she can to create an awareness campaign and appealed for help to bring new hope in the lives of children and adults who suffer from Cystic Fibrosis.