Michelle Muscat appointed patron of EURORDIS, the European Alliance of Rare Disease
For the sixth consecutive year, the Prime Minister’s wife and President of the Maltese Alliance of Rare Disease, Michelle Muscat, was appointed as patron of EURORDIS, the European Alliance of Rare Disease.
Mrs Muscat, the founder of the Maltese alliance, emphasized the importance of working with patients who are diagnosed with this type of disease. In a small country such as Malta, a person with a rare disease, many times ends up isolated at home, both as little is known about the disease and also because the person faces difficulty to find support from the surrounding communities.
Mrs Muscat added that Malta is assuming an important role in this sector not only on a national level, but also at the European and international level when in the coming days Malta – through the National Alliance – will be participating at a meeting under the umbrella of the UN in the United States.
Currently, the Alliance of Rare Disease is organizing a national campaign for more awareness and so that more patients with rare disease join together to provide each other with support.